Dimensions of Caregiving in Schizophrenia

Authors

  • Sahar Fatima Department of Psychology, University of Karachi, Pakistan.
  • Qudsia Tariq Department of Psychology, University of Karachi, Pakistan.

DOI:

https://doi.org/10.36570/jduhs.2022.2.1600

Keywords:

Caregiving, Schizophrenia, Express emotions, Illness perception, Caregiving burden, Quality of life, Qurnout, stigma

Abstract

Family plays a vital role in the lives of individuals living with mental illnesses like schizophrenia. Schizophrenia is a severely disabling mental illness which affects the functioning of family caregivers. Family caregivers of individuals with schizophrenia have received significant consideration in recent years due to robust family involvement in caregiving of ill individuals. The family environment reflects the estimate of psychosocial factors that anticipate the prognosis of illness. Not surprisingly, family caregiving is a prominent support system that displays diverse roles regarding caregiving of individuals with mental illness; however, it has been stayed overlooked by the mental health practitioners. Family caregivers of individuals living with schizophrenia have to deal with a number of problems, such as associated stigma, burnout and reduced quality of life. These problems are result from apparent role of caring when combined with inefficient support system and unproductive ways of coping. Subsequently, may affect the biopsychosocial integrity and quality of life of caregivers. It is now well recognised concern for a mental health professional to acknowledge various dimensions of caregiving and cater the needs associated with family caregivers of individuals with schizophrenia. This review article used a descriptive approach to develop qualitative themes of different dimensions of caregiving from the review of literature. This is a retrospective study which has given an overview of different dimensions of caregiving in context of individuals living with schizophrenia. It is important to pursue further research on this neglected public health concern of caregiving.

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References

WHO Schizophrenia – World Health Organization. Available from: https://www.who.int/topics/schizo-phrenia/en/. [Last accessed on 2020 Feb 12].

Grover S, Pradyumna, Chakrabarti S. Coping among the caregivers of patients with schizophrenia. Ind Psychiatry J 2015; 24:5-11.

doi:10.4103/0972-6748.160907

Talwar P, Matheiken ST. Caregivers in schizophrenia: A cross Cultural Perspective. Indian J Psychol Med 2010; 32:29-33. doi:10.4103/0253-7176.70526

Kuipers E, Onwumere J, Bebbington P. Cognitive model of caregiving in psychosis. Br J Psychiatry 2010; 196:259-65. doi:10.1192/bjp.bp.109.070466

Patel KR, Cherian J, Gohil K, Atkinson D. Schizophrenia: overview and treatment options. P T 2014; 39:638-45.

Elegbede VI, Obadeji A, Adebowale TO, Oluwole LO. Comparative assessment of quality of life of patients with schizophrenia attending a community psychiatric centre and a psychiatric hospital. Ghana Med J 2019; 53:92-9. doi:10.4314/gmj.v53i2.3

Sharif L, Basri S, Alsahafi F, Altaylouni M, Albugumi S, Banakhar M, et al. An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia-A Qualitative Study. Int J Environ Res Public Health 2020; 17:6405. doi:10.3390/ijerph17176405

Chakrabarti S. Research on family caregiving for mental illness in India and its impact on clinical practice: Are we doing enough to help families? Indian J Soc Psychiatry 2016; 32:19-24. doi:10.4103/0971-9962.176762

Mestdagh A, Hansen B. Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies. Soc Psychiatry Psychiatr Epidemiol 2014; 49:79-87.doi:10.1007/s00127-013-0729-4

Koschorke M, Padmavati R, Kumar S, Cohen A, Weiss H A, Chatterjee S, et al. Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India. Soc Sci Med 2017; 178:66-77. doi:10.1016/j.socscimed.2017.01.061

Awad AG, Voruganti LN. The burden of schizophrenia on caregivers: a review. Pharmacoeconomics 2008; 26:149. doi:10.2165/00019053-200826020-00005

Lefley HP. Aging parents as caregivers of mentally ill adult children: an emerging social problem. Hosp Community Psychiatry 1987; 38:1063-70.

doi:10.1176/ps.38.10.1063

Dyck DG, Short R, Vitaliano PP. Predictors of burden and infectious illness in schizophrenia caregivers. Psychosom Med 1999; 61:411-9.

doi:10.1097/00006842-199907000-00001

Dwyer JW, Lee GR, Jankowski TB. Reciprocity, elder satisfaction, and caregiver stress and burden: The exchange of aid in the family caregiving relationship. J Marriage Fam 1994:35-43.

Murthy RS. Caregiving and caregivers: Challenges and opportunities in India. Indian J Soc Psychiatry 2016; 32:10-8. doi:10.4103/0971-9962.176761

World Federation of Mental Health (WFMH). Caring for the Caregiver. Woodbridge, USA: World Federation of Mental Health; 2013.

Chadda RK. Caring for the family caregivers of persons with mental illness. Indian J Psychiatry 2014; 56:221-7. doi:10.4103/0019-5545.140616

McCrae N, Sharif L, Norman I. Media portrayals of men-tal disorder in Saudi Arabia: a review of popular newspapers. Transcult Psychiatry 2019; 56:428-42. doi:10.1177/1363461518819117

Ito H, Setoya Y, Suzuki Y. Lessons learned in developing community mental health care in East and South East Asia. World Psychiatry 2012; 11:186-90.

doi:10.1002/j.2051-5545.2012.tb00129.x

Chan SW. Global perspective of burden of family caregivers for persons with schizophrenia. Arch Psychiatr Nurs 2011; 25:339-49.

doi:10.1016/j.apnu.2011.03.008

Alvarez-Jimenez M, Priede A, Hetrick SE, Bendall S, Killackey E, Parker AG, et al. Risk factors for relapse following treatment for first episode psychosis: a systematic review and meta-analysis of longitudinal studies. Schizophr Res 2012; 139:116-28.

doi:10.1016/j.schres.2012.05.007

Clark RE. Family costs associated with severe mental illness and substance use. Hosp Community Psychiatry 1994; 45:808-13. doi:10.1176/ps.45.8.808

Akbari M, Alavi M, Irajpour A, Maghsoudi J. Challenges of Family Caregivers of Patients with Mental Disorders in Iran: A Narrative Review. Iran J Nurs Midwifery Res 2018; 23:329-37.

doi:10.4103/ijnmr.IJNMR_122_17

Zanetti ACG, Souza TMP, Tressoldi LS, de Azevedo-Marques JM, Corrêa-Oliveira GE, Silva AHSD, et al. Expressed emotion and family burden in relatives of patients in first-episode psychosis. Arch Psychiatr Nurs 2018; 32:390-5. doi:10.1016/j.apnu.2017.12.003

Hinojosa-Marques L, Domínguez-Martínez T, Kwapil TR, Barrantes-Vidal N. Predictors of criticism and emotional over-involvement in relatives of early psychosis patients. PLoS One 2020; 15:e0234325.

doi:10.1371/journal.pone.0234325

Sadath A, Muralidhar D, Varambally S, Gangadhar BN, Jose JP. Do stress and support matter for caring? The role of perceived stress and social support on expressed emotion of carers of persons with first episode psychosis. Asian J Psychiatr 2017; 25:163-8. doi:10.1016/j.ajp.2016.10.023

Wiedemann G, Rayki O, Feinstein E, Hahlweg K. The Family Questionnaire: development and validation of a new self-report scale for assessing expressed emotion. Psychiatry Res 2002; 109:265-79.

doi:10.1016/s0165-1781(02)00023-9

Carra G, Cazzullo CL, Clerici M. The association between expressed emotion, illness severity and subjective burden of care in relatives of patients with schizop-hrenia. Findings from an Italian population. BMC Psychiatry 2012; 12:140.

doi:10.1186/1471-244X-12-140

Bastug G, Karanc N. The Impact of Caregivers' Expresed Emotion and the Patients' Perception of Expressed Emotion on the Positive and Negative Symptoms of Patients with Schizophrenia in a Sample from Turkey. Duşunen Adam J Psychiatry Neurol Sci 2015; 28:127-39. doi:10.5350/DAJPN2015280205

Cavelti M, Contin G, Beck EM, Kvrgic S, Kossowsky J, Stieglitz RD, et al. Validation of the Illness Perception Questionnaire for Schizophrenia in a German-Speaking Sample of Outpatients with Chronic Schizophrenia. Psychopathology 2012; 45:259–69.

doi:10.1159/000330262

Hussain S, Imran N, Hotiana UA, Mazhar N, Asif A. Illness perceptions in patients of schizophrenia: A preliminary investigation from Lahore, Pakistan. Pak J Med Sci 2017; 33:829-34. doi.org/10.12669/pjms.334.13128

Morrison P, Stomski N. Experiences of family carers for persons using antipsychotic medication. Aust N Z J Fam Ther 2017; 38: 498–513.

Iseselo MK, Ambikile JS. Medication challenges for patients with severe mental illness: experience and views of patients, caregivers and mental health care workers in Dar es Salaam, Tanzania. Int J Ment Health Syst 2017; 11:17.

doi:10.1186/s13033-017-0126-6

Kumar CN, Suresha KK, Thirthalli J, Arunachala U, Gangadhar BN. Caregiver burden is associated with disability in schizophrenia: results of a study from a rural setting of south India. Int J Soc Psychiatry 2015; 61:157-63.doi:10.1177/0020764014537637

Igberase OO, Morakinyo O, Lawani AO, James BO, Omoaregba JO. Burden of care among relatives of patients with schizophrenia in midwestern Nigeria. Int J Soc Psychiatry 2012; 58:131-7.

doi: 10.1177/0020764010387544

Hayes L, Hawthorne G, Farhall J, O'Hanlon B, Harvey C. Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes. Community Ment Health J 2015; 51:591-7.

doi:10.1007/s10597-015-9848-6

Ribe JM, Salamero M, Pe´rez-Testor C, Mercadal J, Aguilera C, Cleris M. Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. Int J Psychiatry Clin Pract 2018; 22: 25–33.

doi.org/10.1080/13651501.2017.1360500

Caqueo-Urizar A, Alessandrini M, Urzua A, Zendjidjian X, Boyer L, Williams DR. Caregiver's quality of life and its positive impact on symptomatology and quality of life of patients with schizophrenia. Health Qual Life Outcomes 2017; 15:76.

doi.org/10.1186/s12955-017-0652-6

Chien WT, Yeung FK, Chan AH. Perceived stigma of patients with severe mental illness in Hong Kong: relationships with patients' psychosocial conditions and attitudes of family caregivers and health professionals. Adm Policy Ment Health 2014; 41:237-51. doi: 10.1007/s10488-012-0463-3

Litzelman K, Kent EE, Rowland JH. Social factors in informal cancer caregivers: The interrelationships among social stressors, relationship quality, and family functioning in the CanCORS data set. Cancer 2016; 122:278-86.

doi:10.1002/cncr.29741

Treasure J, Nazar BP. Interventions for the Carers of Patients With Eating Disorders. Curr Psychiatry Rep 2016; 18:16.

doi: 10.1007/s11920-015-0652-3

Rigoni L, Bruhn RF, De Cicco R, Kanda JL, Matos LL. Quality of life impairment in patients with head and neck cancer and their caregivers: a comparative study. Braz J Otorhinolaryngol 2016; 82:680-6.

doi: 10.1016/j.bjorl.2015.12.012

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Published

2022-07-04

How to Cite

Fatima, S. ., & Tariq , Q. . (2022). Dimensions of Caregiving in Schizophrenia. Journal of the Dow University of Health Sciences (JDUHS), 16(2), 95–100. https://doi.org/10.36570/jduhs.2022.2.1600

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Section

Review Article